Tuesday, July 14, 2009

Did you miss me?

If you thought I died I wouldn't blame you! Sorry, for the gaping hole between my posts, but what can I say these days are all about PORTER!!! So in an effort to get caught up I'm just going to list little tid-bits of what's been going on with us.{He loves his thumb}
  • Porter's weight gain is on the low side so the last few weeks have been filled with research and seeking out help to find ways to help him gain. Still open to suggestions if you've got them. This has resulted in him eating much more frequently and I'm going to use that as an excuse for not posting.
{It never fails he always gets his hands out}
  • I never thought I'd see the day when I would have a hard time eating enough to meet my calorie count. I feel like I'm eating a TON but then I count them up and still have a thousand to go. The joys of nursing! Can we say, "Time for some Haagen-Dazs!"
  • We had a wonderful visit from Treesha who works for "Sharing Down Syndrome Arizona." She brought me a small library of books, t-shirts, and two teddy bears. She was so fun to have around because she absolutely loved Porter. The information she brought has been and I'm sure it will continue to be a blessing.
  • Porter had an intake evaluation last week for early interventions and it was so interesting. A nurse and special educator who specialize in early childhood development came to our house to work with him. They were both impressed with his strength and the nurse kept saying, "You shouldn't be doing this yet, baby!" She also gave us some bad news...She predicts Porter will be an early crawler because he's so squirmy. :( Together with these specialists we'll write a plan for Porter's development and they'll teach me how to help him along the way. I'm so excited!!!
  • Even with the low weight gain Porter out grew his preemie clothes 2 weeks ago! YAY, but a little sad too.
  • We had a fun 4th of July with Aaron's family which included good food, good company, and a late drive home.
  • Porter had another hearing test. There wasn't a change so we'll try one more time in a few weeks.
  • Porter smiles at Aaron every day when he gets home from work! (yes I'm jealous) These are the only consistent smiles we get, althought, patty cake works most of the time.
{All my boys just sleeping}
  • Lastly, in case I disappear again...Please pray for us on Friday. Porter is having an echo cardiogram done in hopes of confirming a healthy heart. We'll be meeting with a cardiologist. Even though it's just routine it's still nerve racking.
See I told ya...life is all about Porter

5 comments:

Megs said...

Great to see an update!

Heidi Hillman said...

Hi there!
I just found your blog and love it. Your little guy is darling! I just want to kiss those cute cheeks every time I see him!

Ann said...

I did miss you. Loved the update and Porter's picture with his thumb.

Rachael said...

I feel like I haven't seen you guys in a long time but it's only been 11 days! :] I love you guys!

Annelie said...

I was about to send you guys an email or text to demand some family updates... :) Thanks for sharing the latest news. He still is adorable!!!

Love,
Annelie